‘All things Autism’ Anna’s guests this week at Women’s Radio was Brenda from Apparent Pathway
Anna Kennedy’s guests this week on Women’s Radio Station was Brenda from Apparent Pathway. ‘All things Autism and life in Lockdown’ will be aired at 1pm and 1am every day this week. Please see www.womensradiostation.com
It was a great experience to talk with Anna and introduce myself on the show. I am Brenda, a proud parent to a teenager who has a diagnosis of ASD and ADHD. This year, I set up a service that supports parents raising children living with individual differences to stay empowered whilst navigating through procedural challenges, called Apparent Pathway.
It was nice to discuss how, as a parent, I have and continue to advocate for my son’s efforts to be better recognised, as he has transitioned through schools, local offers and services, within different boroughs and counties.
As well as navigating through changes in legislation and circumstances. It has been good to talk about how I have experienced the attentiveness and skilled assistance from therapists, practitioners, teachers, charities and council workers towards my son’s needs as they have supported him to make big strides in his success as he continues to achieve in his learning and purpose in life.
It has been reassuring to talk about how myself and other parents in similar positions endured despair, uncertainty and the immense worry that comes with waiting for a decision, diagnosis’, access to a provision and or service, with someone who understands and recognises how these experiences can have an overwhelming impact on any parent.
As a professional working within the local authority settings; I supported parents like myself to manage the challenging circumstances that they found themselves in. These roles allowed me to observe, listen to and identify, what I would describe as, ‘grey areas’ that resonated to me as a fellow parent. I felt tremendous empathy for parents who were engaging in the processes, but, not feeling empowered, or that were searching for solutions, yet, finding themselves feeling lost.
What I recognised is that no professional wants to be in a position where they cannot support or apply their skills when needed, however there are obstacles for everyone one, which tends to be around miscommunication, misunderstanding, a lack of funding, availability, or consistency. That is where it is hard.
Apparent Pathway was set up this year, during a year of uncertainty and unforeseen challenges. These challenges have created difficulties especially for children living with ASD like my son. The changes in the environment have had an impact on his well being, which has coincided with changes to his health.
As a parent ensuring that your child is supported even when there is a change in their health and wellbeing, assistance required, change in the law, or their circumstance, it takes a lot from a person to take on setbacks and seek possibilities that will benefit their growth and development.
It has been rewarding for me to talk with Anna about starting a service that supports parents in a way that allows them to receive the insight and resources to go from gaining clarity, to then taking action towards creating possibilities that enable them to feel empowered to make conscious contributions towards their child’s progress.
Anna, thank you for allowing me to share my encounters and how I aim to support fellow parents like myself experiencing similar experiences.